“Even When I’m Confused, I Don’t Feel Like I Am Lost”

From Todd Ballantine, PCA Patient

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dementia risk factors

Upcoming Events

  • Rocky Mountain Conference

    Please join us for this popular event held over two days: March 10 & 11 from 9:30 a.m. - 2:30 p.m. with breaks throughout. There is no cost to attend the 2021 conference so reserve your seat today. Visit our website to register by clicking here.

    For over 30 years, the Colorado chapter has hosted an education conference for family caregivers, friends and professional care providers to learn more about Alzheimer’s disease and dementia. This year is no different but, thanks to the generosity of the Marion Esser Kaufmann Foundation, we will be live via webinar so that participants can join us safely from the comfort of their home or workplace. Find out about the latest advances in research on day one, during our keynote featuring Alzheimer’s Association Director of Scientific Engagement Rebecca Edelmayer, Ph.D. On day two, join us to learn more about other types of dementia from a panel of experts.

    We’ve designed an event that will help with the challenges of caregiving during the COVID-19 pandemic, which has greatly impacted people living with dementia. Sessions will include ways to practice self-care, help navigating all of the care options, learn what person-centered care really looks like, how to make each day a meaningful one for those you care for, and the importance of tackling those tough conversations about end of life. We will close both days with a touch of humor and hope.

    We have exhibitor and sponsor opportunities too. Contact Tina Wells twells@alz.org or Nancy Thompson nthompson@alz.org to learn more details.

Thank you for Your Donations

Lauren Munilla
Guin & Ronald Lyster
Janella Rosenthal
Lucy & Anthony Turrisi
An Award-Winning New Mexican Filmmaker
Carol Hawkins
Kurt & Melissa Ronacher
Jessica Fish
Kimberly Best
Jaime & Rose Pabon
Roberta Schain
Michelle Lutz
Dorothy & Dwight Finkel
Jill & Theodore Nelson
Susan Bardwell & Frank Scalise
Dudley A. Eppel, Jr.
Michelle Doe
Andy Weinheimer & Sue Eyler
Robert Yetz
Colleen Peace
Michael & Martha Montano
Barbara & Lee Mendel

Kenneth Tiffany
Edwin Baxter
Thomas & Joy White

Susan & John Quinlan
Victoria Pelak, MD

The Brain and Vision Fund wishes to thank our generous donors! The funds have helped support a student researcher and research presentations on Posterior Cortical Atrophy at National and International Conferences. Donations also made it possible to hire two summer interns beginning June 10, 2019, Stephanie Serva & Vishal Krishnan. Thank you for making a difference for people with PCA.

PCA Summer Interns – Stephanie Serva & Vishal Krishnan

Summer PCA Research Interns Presentations

CBS News Interview

October 24, 2018: Rare Form of Alzheimer’s Affects What The Eyes See – CBS News Interview of Dr. Pelak & Robert Yetz: Click Here

Our Vision

To be a beacon of hope and refuge for all persons affected by Posterior Cortical Atrophy

Our Mission

To serve those affected by Posterior Cortical Atrophy by providing in-person meetings and a virtual space for support, information, and resources

Dementia Resilience – Jill Lorentz Podcast with Dr. Pelak

Take a listen to Dementia Resilience with Jill Lorentz podcast with an interview of Dr. Pelak discussing Posterior Cortical Atrophy and other episodes to help people with PCA and their care partners. Click here: DRwJL & Dr. Pelak – PCA Podcast

NEW FILM ABOUT LIVING WITH POSTERIOR CORTICAL ATROPHY May 8 to Jun 30, 2020
An award-winning independent filmmaker and Director, Ann Bromberg, has released a film entitled Painting Gray about artist Brian O’Connor, who has PCA. The filmmaker and Brian O’Connor and Brian’s wife, Iva Morris, invite you to “buy a ticket/donation to the Guild Cinema” to watch online. A percentage of the donations will go to the Colorado Brain and Vision Fund to help support PCA research and the Colorado PCA Support Group. The cost is minimal ($5). See below for the link to the film.

SUMMARY OF THE FILM
Painting Gray is an intimate biographical sketch of a renowned Native New Mexican painter as he redefines himself in his art studio while battling a progressive brain disorder, PCA, or Posterior Cortical Atrophy. This compelling narrative is unique in its presentation through the cinematic language that focuses on the stigma of the disease, both personal and professional, within a vibrant art community. The outcome of Painting Gray reveals the short and long-term effects of PCA through the mind of master painter Brian O’Connor.
You can view the film HERE

Biogen’s Aducanumab

If you want to learn more about results for an Alzheimer’s disease drug trial, click here: Biogen’s Aducanumab

©2018 Colorado PCA Support (PCA). All rights reserved

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